Moving Forward Together
If you have recently been diagnosed with HSP (Hereditary Spastic Paraplegia) you are not alone. We are here to help and invite you to join us.
The HSP group was formed in 1991 by Stephanie Wyatt to support her affected husband and son. Our membership is now nationwide and continues to expand.
The aims of the group are to encourage and support sufferers. Regional meetings are currently held in Devon, Surrey, The North West, Wales and Scotland, giving members the chance to make friends and learn from one another. We have electronic communications facilities allowing members to share information and keep in touch.
We’ve supported medical research both financially and by providing volunteers. As the group grows in resources, we’ll continue this support and increase it’s magnitude.
We provide members with information on many topics varying from therapies to benefit entitlement.
The group is in direct contact with equivalent associations in Europe, America, and Australia.
What Does the Support Group Do?
A newsletter is distributed quarterly and gives the opportunity for members to share information. Additional advancements in research etc can be highlighted.
Helpline : HSP is a rare condition and additional information at this initial stage of diagnosis can help ease some of the worries. The helpline is run by a fellow sufferer with children. As a qualified counsellor from a social work background, she is suitably qualified to offer guidance and support.
Medical Papers :
Being a rare inherited condition the group has constant contact with genetic specialists, doctors and counsellors. This enables an updated database on current research to be maintained. These papers are available to medical professionals requiring additional specialist information.
Members can apply for financial assistance towards the purchase of a mobility aid,
Or any other item (or treatment) that may help improve their quality of life.
Informal get-to-gethers are held at various locations nationwide for members to share information and make new friends.
Medical professionals are invited to update the group on research and new medical aspects
of the condition at our annual conference. Additionally it is a platform for members to meet socially. Due to increased membership and to ease on travelling smaller conferences in the north and south may be considered.
Contact Peter Bateman
Home 01656 788502